firemonkey wrote:
Quote:
About half of all people with autism also have intellectual disability. But a great deal of autism research is drawn almost exclusively from participants without intellectual disability, as my colleagues and I reported earlier this year1.
And yet, the researchers tend to generalize the findings across the whole spectrum.
https://www.spectrumnews.org/opinion/vi ... d-studies/A very bad consequence of this is, as the article says:
Quote:
Another important consequence of the bias is a paucity of evidence for the efficacy of autism therapies for these individuals. If a service is exclusively tested on people without intellectual disability, it may be hailed as suitable for all autistic people — but may not be. In fact, mounting evidence suggests that traits, etiologies and responses to treatment are not the same for autistic people with and without intellectual disability[3].
Worse yet, footnote 3 links to an abstract of a journal article titled
Defining Precision Medicine Approaches to Autism Spectrum Disorders: Concepts and Challenges.
Surely, if huge amounts of money are to be spent on attempts at "precision medicine," it should be targeted primarily at the MOST severely disabled autistic people, NOT the LEAST severely disabled people???!
See also
my post here in the thread
In search of truce in the autism wars.
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- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.
21 May 2019, 8:23 am
