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rdos
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13 Dec 2008, 4:27 pm

Yes, the genocide aspect (prenatal testing and abortion) will simply have to go. I doubt these tests will ever get enough sensitivity to be useful, but they would probably be even less useful for the LFA group because their disabilities are probably just as complex as mental retardation, which doesn't have any genetic tests, and probably never will either. The ABA treatments more or less also have to go. However, I have nothing (in princple) against chelation, diets and alike, as long as they are built on science and not fanatical peoples ideas.



Kilroy
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13 Dec 2008, 5:38 pm

fbug wrote:
jimmister wrote:
Hello.

I just want to tell you all to leave the pro-cure groups alone.

You have every right to have your opinion, but wouldn't you rather have good social skills than other positive aspie traits, in order to get married and have a family? Sure, aspies can do that, but it's a lot trickier (the troubling challenge of finding someone plus all the years God has cost me of having to learn social skills, I don't even feel like learning). Getting married and having a family is the MOST important thing I want to do in my entire lifetime, aside from everything else. What do you say?


:evil: No, I don't think so, bub. They're the ones who need to leave us alone and let us live how we please. As for how it is "a lot trickier" to learn social skills, that would not be the case if there were appropriate treatment to help overcome those issues. Instead all those people want to do is try to "cure" people who they determine to be "disabled", but the truth is ASDs can not be cured any more than left-handedness can be cured. The real issue here is not needing a cure, but the need for people to tolerate those who are different. We'll leave them alone as soon as they stop saying people that they don't approve of are "diseased", "disabled", or "broken" and need to be "fixed." Everyone has the right to be who they are without anyone interfering as long as they're not infringing on the rights of anyone else.

And by the way, if there are some wants a cure for themselves, so be it. That is their right But the whole idea of a cure is instead being pushed on those who do not want it and are happy with who they are.

The sort of lowlifes supporting the idea of a cure are no different than those who put disabled people in institutions to "protect" society from them, if not those who perpetrated the Holocaust.


f**k you man-I have every right to want to live a normal non AS life if I want to :roll:



Samara
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13 Dec 2008, 6:37 pm

I dont wanna act AS either. Like I am mildly autistic, big deal. I am no different to the the neighbour next door who proberly has a disorder like having to sleep under newspapers, a disorder that is not yet known and who cares if he likes to sleep under newspapers. Why does every difference from the norm have to be labelled as a disorder.

Maybe we only get labelled with disorders because the world or society is disordered in the way that it has trouble accepting differences. Maybe everyone was meant to be born with more AS like brains and be more focused and intelligent like Einstein. That means we could say NT's would have a disorder and not us. I like to look at 'so called' disorders especially that are mild as simply a difference. It becomes a problem when people are rejected because it affects their self image.

It is how you see yourself that is most important. I beleive with the right support and enviroment alot of people with ASD can function just as well as NT's. However, you cant expect the world to accept your differences as to go out of their way to meet your needs. Alot of people do this. If it is not right to them they just wont participate. I just dont think some people have the right attitude. The fact is you have to go out of your way to get your needs meet.
This is especially true for people with disabilities or differences. We are disadvantaged and that is why we have to make the extra effort.

Still we are all the same. We all have different thinking wether or not we have a disorder. Sometimes I think labels just bring us down.



Fayed
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13 Dec 2008, 10:30 pm

rdos wrote:
Fayed wrote:
It's called Godwin's Law. The longer a thread goes on, the greater the chances of a reference to the Holocaust. People refer to the Holocaust because it brings up emotion in people.

Pro-Cure = Experience with LFA.
Anti-Cure = Experience with HFA.



I would put it in another way:

Pro-Cure LFA = cure comorbid conditions to Autism
Anti-Cure HFA = keep the personality traits.

There is actually little conflict here. I wish we could come up with some common ground terms that we can identify with the same meaning. Cure is a horrible term because it obviously has so different meanings to parents with LFA-kids and adults with HFAs. Especially since there is absolutely no cure today for the personality-traits, while there do exist cures for many of the comorbid conditions.


So what about the traits that aren't because of the comorbid conditions? Or are you saying the negative aspects of LFA are all attributable to these comorbid conditions?



Eggman
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14 Dec 2008, 2:42 am

jimmister wrote:
Hello.

I just want to tell you all to leave the pro-cure groups alone.

You have every right to have your opinion, but wouldn't you rather have good social skills than other positive aspie traits, in order to get married and have a family? Sure, aspies can do that, but it's a lot trickier (the troubling challenge of finding someone plus all the years God has cost me of having to learn social skills, I don't even feel like learning). Getting married and having a family is the MOST important thing I want to do in my entire lifetime, aside from everything else. What do you say?


Dear Jimmy Boy....
This is why we dont like it. The assumption that your way of living is the best and that we all would be better off living it.
You have to wake up and face the facts..
1 not everyone lives your way of life
2. pople value their waof life even if it is not your way of life
3people value their way of life more then they value their way of life.

It dodesnt even matter if you dont understand, that is not necassryu. Just accept it.
Most of what I notice peope base on their interections are stuff I at best have no intetrest and at worst I hate. Why would I want to be that way?

Not all people want to get married.
Not all people want to have childtren...even the ones that are ,arried.
Having aspegers has nothing to do with my romantic intercations or reproductive activites.
I will stop going against your cure when you stop pushing it on me and admit its not a cre as I have no dissaese. I am wired differently. SO what That isnt a flaw. I value my thoughts and way of life more then I value yours yet I am not after you to alter your construction so give me the same curtisy



rdos
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14 Dec 2008, 4:10 am

Fayed wrote:
So what about the traits that aren't because of the comorbid conditions? Or are you saying the negative aspects of LFA are all attributable to these comorbid conditions?


Basically, yes. The only difference between LFAs and HFAs is in coping abilities, IQ and alike. None of the difference is related to the personality-traits. In transforming a LFA to a HFA you don't need to affect personality-traits, even though ABA and alike TRY to do it, which is clearly misguided.

Having said that, it is clearly really not a good idea to let crazy doctors or NT-parents decide the best treatments for LFAs, as what they think their children wants it to have their brains rewired in the NT-way. Almost nobody with HFA/AS wants this, and since LFAs shares the preferences of the HFA-group, neither do LFAs if they could make their voice heard. What they would want is better coping abilities, and better functioning, not having their brains rewired. Besides, with poorer coping abilities, the LFA group should not even be expected to copy NTs, they should be understood in their natural way of being. This would mean caregivers should be obliged to learn their way of being instead of trying to rewire them.



Eggman
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15 Dec 2008, 1:25 am

pwned



chamoisee
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15 Dec 2008, 4:00 am

No. There are lots of things I don't like about them, yet I don't launch websites tryign to cure their shallow, intectually impaired little selves. They've got no right to try to impose cures on unwilling subjects. We're people, not guinea pigs.



HolyDiver
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16 Dec 2008, 4:58 am

I'm all for people being what ever they want to be. If you don't want to be an Aspie or autistic person, fine. If you want to be, welcome to the club. If you want to be a carrot, go for it. I'm hesitatant though. I fear that if there is a cure, society will put pressure on autistic people and their families to go with the cure. With the cure out and autism viewed as a disease, being autistic will be viewed as "idiotic", and insane, creating even more stigma. With enough social pressure, genocide can take place.

Here are the conditions I want if there is a cure:

1. The procedure may only be done on those 18 or older.
2. The procedure can be reversed, or neurotypicals can be made into aspies.
3. Forced cure is illegal.
4. If an aspie wishes to be an aspie again, the reverse process should be free.



ThisUserNameIsTaken
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16 Dec 2008, 6:54 am

HolyDiver wrote:
I'm all for people being what ever they want to be. If you don't want to be an Aspie or autistic person, fine. If you want to be, welcome to the club. If you want to be a carrot, go for it. I'm hesitatant though. I fear that if there is a cure, society will put pressure on autistic people and their families to go with the cure. With the cure out and autism viewed as a disease, being autistic will be viewed as "idiotic", and insane, creating even more stigma. With enough social pressure, genocide can take place.

Here are the conditions I want if there is a cure:

1. The procedure may only be done on those 18 or older.
2. The procedure can be reversed, or neurotypicals can be made into aspies.
3. Forced cure is illegal.
4. If an aspie wishes to be an aspie again, the reverse process should be free.


Will you people please stop throwing around the word genocide? Genocide is a systematic extermination of a race via methods of forced sterilization, murder, and physical removal (deportation, concentration camps, etc). Merely drugging people doesn't count. In fact, drugging aspies would have the opposite effect of genocide since the genes for the disorder would become much more widespread since there would no longer be any phenotypical expression of the autism gene (in other words people with the genes for AS and autism would find it easier to get laid and produce offspring).

As for your conditions for a cure:

1. Curing a person's autism after they're 18 completely defeats the point. Autism gets worse the longer it's left untreated (for most people anyway). Hence the reason why it's so important right now to catch autism in kids as young as possible, so that treatment can begin ASAP and thus give them a better chance of leading an uninhibited life. Medical cures aren't magic. While a cure for autism/AS would eliminate the cause of the symptoms, the effects of the disorder would still be just as bad in an older person. A drug isn't going to catch you up on all the social skills you failed to learn, nor would it help LFAs learn to speak. All a cure would do for older people is just allow traditional treatments to be more effective.
2. No doctor in their right mind is going to purposefully harm a patient (and this would be considered harming a person). No pharmaceutical company is going to pump out a drug that gives people a PDD. No scientist is going to research how to turn people into aspies unless they happen to stumble upon that fact in the process of developing a cure, or if they're doing some sort of weapons research.
3. Forced treatments already are illegal
4. Well, if you happened to live in Great Britain, Canada, or any other country with universal healthcare then the process would be free. However, you live in America (I assume) where we charge people tens of thousands, if not hundreds of thousands of dollars to have a chance at being cured of a terminal illness. And rest assured that your health insurance sure as hell wouldn't cover a procedure that gives you a mental disorder.



Fintan29
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16 Dec 2008, 2:44 pm

Boo. They're trying to get rid of a group of people called the "Autistic" group. How about they cure NTs of being normal and stupid?



kittenmeow
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16 Dec 2008, 5:59 pm

ThisUserNameIsTaken wrote:
HolyDiver wrote:
I'm all for people being what ever they want to be. If you don't want to be an Aspie or autistic person, fine. If you want to be, welcome to the club. If you want to be a carrot, go for it. I'm hesitatant though. I fear that if there is a cure, society will put pressure on autistic people and their families to go with the cure. With the cure out and autism viewed as a disease, being autistic will be viewed as "idiotic", and insane, creating even more stigma. With enough social pressure, genocide can take place.

Here are the conditions I want if there is a cure:

1. The procedure may only be done on those 18 or older.
2. The procedure can be reversed, or neurotypicals can be made into aspies.
3. Forced cure is illegal.
4. If an aspie wishes to be an aspie again, the reverse process should be free.


Will you people please stop throwing around the word genocide? .


Sorry but it is genocide if they are planning for future prenatal screening for autism and spreading fear as a form of "awareness". Gee what do you think will happen if a pregnant woman hears "sorry but tests result conclude your unborn child is most likely going to be autistic".

If you don't consider that genocide, shame on you. Perhaps you are just here to defend the rights of those who want to go forth with this "cure" What about the rights of autistics? :roll:



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16 Dec 2008, 7:54 pm

I would like the idea of curing some of the symptoms without curing autism. They are testing some hormones that can increase empathy and facial feature recognition. Or maybe to reduce stimming or social anxiety, maybe to help with sensory issues. And you can take what you need, in a dose you need, without wiping out your personality.

I could be all for that.



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16 Dec 2008, 7:58 pm

Me too! :D



LeKiwi
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16 Dec 2008, 8:51 pm

If there was something to cut out my anxiety, I'd be all for that.

Other than that, I've managed to embrace my autistic traits and turn them into good things, so it doesn't bother me. Had you asked me if it did ten years ago, however, there'd be a much different answer.

How about something to just skip all the sh***y teenage angst that's made a hundred times worse by AS, but without actually losing all the good stuff about those years?


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17 Dec 2008, 2:22 am

ThisUserNameIsTaken wrote:

1. Curing a person's autism after they're 18 completely defeats the point. Autism gets worse the longer it's left untreated (for most people anyway). Hence the reason why it's so important right now to catch autism in kids as young as possible, so that treatment can begin ASAP and thus give them a better chance of leading an uninhibited life. Medical cures aren't magic. While a cure for autism/AS would eliminate the cause of the symptoms, the effects of the disorder would still be just as bad in an older person. A drug isn't going to catch you up on all the social skills you failed to learn, nor would it help LFAs learn to speak. All a cure would do for older people is just allow traditional treatments to be more effective.


This is just egregious ignorance. Where's the evidence that autism actually gets worse at any point simply due to age? Nonsense. Furthermore, there's no evidence that autism is a inherently degenerative condition in any other way.

There's no treatment for autism. None. There's therapies, and yes, children can benefit from some therapies. But adults can benefit from therapies equally so, provided there is not some other reason they can't or won't, like mental illness or lack of cooperation.

It sounds like you're conflating autism - a neurological condition - with comorbid psychological or emotional problems that some autistics can develop secondary to their autism, like PTSD, depression, anxiety disorders, personality disorders, anger management issues, victim complex, self esteem problems or just a general sh***y, "poor me" attitude.

I am an adult with AS. I also have PTSD and depression. My PTSD and depression required treatment, but after that, all I needed was a little of therapy and living skills coaching to help me cope better with the challenges of AS. The rest I've been able to figure out on my own, largely because I was willing to take responsibility for myself. Frankly, a lot of coping with autism as an older person has nothing to do with what other people can do to "fix" you, but learning to take care of yourself. And surprise!, the therapies most successful with autistics, both LFAs and HFAs, and both young and old, help toward that end.

Quote:
4. Well, if you happened to live in Great Britain, Canada, or any other country with universal healthcare then the process would be free. However, you live in America (I assume) where we charge people tens of thousands, if not hundreds of thousands of dollars to have a chance at being cured of a terminal illness. And rest assured that your health insurance sure as hell wouldn't cover a procedure that gives you a mental disorder.


Autism is not a mental disorder. "Mental" disorders are psychological, and autism is not psychological. It's neurological. As I said above, autistics can develop secondary psychological problems, but not all necessarily do, which shows autism itself does not cause mental disorders. Whether an autistic develops such a comorbid psychological condition seems to depend far more on the individual's life experiences, especially how people around them react to their autism, or other genetic/hereditary factors like predisposition to OCD, bipolar disorder, ADHD, poor psychological resilience, etc.