Wonderful Asperger Poster
Ahhh, great. Just say that I am misinterpreting and distorting everything again (whilst at the same time having no clue about what you are saying no less!) without giving any evidence again and then make some vague accusation via some test that I am somehow not autistic or not autistic enough. I can see why I might have problems with more than one person here, especially as more than one of them stick their faith in a cavalcade of vitreous insults.
You have also failed to disprove anything I just said: The problem of ad hominem arguments.
The only unwarranted statement about Gedrene that has been made recently was that his points on autism are to be ignored because he is undiagnosed. Points should be ignored based on there merit. There are many undiagnosed people here as well as family members of the diagnosed that provide as much knowledgable information about autism as anyone else.
Thanks aghogday. Here's something he did right! And I congratulate it! Now can someone actually prove where what I did was wrong? Or can I just ask aghogday for a simple, inoffensive and not so hard to make apology without people presuming to know my body function?
Thanks Gedrene. I have been polite to you and much more tolerant than most would in this situation. The way I approached the issue on autism was tactful and meant to be helpful. No apology was warranted, for the tactful way I presented the information. I was polite enough, though, to offer an apology for your offense at the way I presented the information, and to state I was wrong in thinking it would help you. It is not an apology of doing something wrong, it is an apology of unintentional offense. That issue is over with.
I take no offense to any the things you have stated that I did not say or indicate, and don't expect an apology from you, because as far as I know you believe everything you are saying, and it may just be an issue of miscommunication that we all are subject to, whether or not someone has any condition at all.
If you would like to have reasoned conversations on other topics, I welcome that, but my involvement on this specific issue is done.
I miscommunicated nothing and heard everything. The problem it seems from all the posts it seems is receptiveness to new ideas. It's good that you didn't take offense at what I said.
I miscommunicated nothing and heard everything. The problem it seems from all the posts it seems is receptiveness to new ideas. It's good that you didn't take offense at what I said.
Looks like you accidentally attributed my quote on the no offense part to Zeraeph instead of me. I corrected it in the quote here. Last time it happened she didn't take kindly to it. You might want to change it to Aghogday as I have done here.
Regarding whether or not there was miscommunication, the record speaks for itself.
No problem, I find myself making that mistake as well. And yes I do agree that people misunderstand what advice is, the only way I think people can clear it up is by making a sincere effort to do that, but as in the case of mistakes like mis-pasting a quote, misunderstandings are often not a result of malice.
I don't see miscommunication as a big deal, and haven't found anyone yet, at least human, that doesn't miscommunicate once in a while. The English language is so complex, that it was almost designed for miscommunication. Particularly when there is no human present to give the non verbal signs to amplify the meaning in the words they are stating. It can be tough to do that in a discussion board. There are no eyes to see sincerity in.
No problem, I find myself making that mistake as well. And yes I do agree that people misunderstand what advice is, the only way I think people can clear it up is by making a sincere effort to do that, but as in the case of mistakes like mis-pasting a quote, misunderstandings are often not a result of malice.
I don't see miscommunication as a big deal, and haven't found anyone yet, at least human, that doesn't miscommunicate once in a while. The English language is so complex, that it was almost designed for miscommunication. Particularly when there is no human present to give the non verbal signs to amplify the meaning in the words they are stating. It can be tough to do that in a discussion board. There are no eyes to see sincerity in.
I don't need your eyes to see sincerity. In some cultures looking in someone's eyes is seen as insincere. Your grasping as social imperatives will not help anyone. As for the english language we must remember what Terry Pratchett once said: A;; language was probably designed to point out where food was.
Malice plays no part in establishing what one is guilty of saying. I would just prefer if you didn't refer to how my mind works as to how I understand something. If I did the same to you I'd expect you to blast me for that. Do unto others as you expect to be done to yourself. It's an argument and we can't just bandy around saying: It isn't his fault, it could be this. It doesn't deal with the argument at hand. As for an apology, I can't force you can I? So I shall have to accept a lack of it.
No problem, I find myself making that mistake as well. And yes I do agree that people misunderstand what advice is, the only way I think people can clear it up is by making a sincere effort to do that, but as in the case of mistakes like mis-pasting a quote, misunderstandings are often not a result of malice.
I don't see miscommunication as a big deal, and haven't found anyone yet, at least human, that doesn't miscommunicate once in a while. The English language is so complex, that it was almost designed for miscommunication. Particularly when there is no human present to give the non verbal signs to amplify the meaning in the words they are stating. It can be tough to do that in a discussion board. There are no eyes to see sincerity in.
I don't need your eyes to see sincerity. In some cultures looking in someone's eyes is seen as insincere. Your grasping as social imperatives will not help anyone. As for the english language we must remember what Terry Pratchett once said: A;; language was probably designed to point out where food was.
Malice plays no part in establishing what one is guilty of saying. I would just prefer if you didn't refer to how my mind works as to how I understand something. If I did the same to you I'd expect you to blast me for that. Do unto others as you expect to be done to yourself. It's an argument and we can't just bandy around saying: It isn't his fault, it could be this. It doesn't deal with the argument at hand. As for an apology, I can't force you can I? So I shall have to accept a lack of it.
Actually I thought you were referring to the advice you were giving others, about sensory integration issues, with respect that you suggested you were giving sincere advice and they didn't see it that way. Sincerity in your eyes, as well as mine. Much of the face can lie, but the eyes don't do a good job of it, unless there is no life in them. Another attempt to support your communication, that I apparently have misunderstood through differences in our comunication.
Well it's their problem: The mother and I didn't even have differences to settle in the end. They were protecting a person who was long gone.
Yes, because presuming how my own body works without any actual intimate knowledge is exactly why I am asking aghogday for an apology. Ironic that the first thing you do is the same thing that I am asking aghogday to apologise for and it shows that you have no actual grip on what I am saying.
Presuming to know how another's body or mind works is presumptuous. Making up how someone thinks because of what they are is also cheap. Again it's ironic that you are defending a person for being polite whilst at the same time calling the other side a twit. As for politeness I would like you to find any insults used to describe aghogday, these are words that are not justified by my argument, an argument that you have only discredited by again doing what aghogday did, which is an ad hominem argument, an argument against my person: Not what I am arguing.
Twisting where? Does everyone have to lack giving evidence for everything around here? Or are you just complaining about me because I wont give up asking for something that nobody has proven that I don't deserve
What's transparent are your insults, with your only evidence being that I wont stop: Fool, ignorance, twit, unable to admit to anything. That's real lovely. Can you provide any proof that my argument is wrong without just blowing hot air?
Yes, one-sided 'petulant' squabble where I asked for someone to not speculate about my state of mental health. Truly I am the paragon of selfishness if I ask people to apologise about that.
This whole thread derail occurred because you presumed to know more about the sensory sensitivities of the boy in the photograph and my son, than the other mother and I do. Neither of us stated that all autistic people have these sensory difficulties, but it is certainly the case that many do. You then recommended "tough love" as an option for us to consider with our sons as if you had some special insight into their conditions which we, their mothers, had somehow overlooked or failed to consider. That's presumptious.
As for the haircut, or lack of it, for many aspies their sensory sensitivities can make having a haircut an uncomfortable or even painful experience. Going to a salon can be overwhelming because of the physical and social contact, and the noise and smells can simply be too much to handle.
No, no and no. Unless you have some added aversive phobia none of this actually happens to people like me. The only reason otherwise I can think of is that they are told that it is the case about themselves at which point they believe it and it comes true. Going to a salon or hairsdresser's for me or my friends or a barber's has never been an overwhelming experience. I could only imagine that it would otherwise happen to a kid who was mollycoddled. Psychological conditioning is more to blame for our problems than any inherent disorder.
You keep talking about "us" and "our problems" and "people like me". You seem to be claiming for yourself the personal and group identity of an autistic person yet you don't yourself experience many of the difficulties experienced by autistic people. I don't doubt that people "like you" have no sensory processing or sensory integration problems, but many people on the Spectrum do. Your "advice" was based on a misunderstanding of the sensory problems referred to by the other mother and me, and you have signally failed to acknowledge that you were mistaken about the problems our children and others have.
As you didn't respond to my post about some of the sensory processing issues my son has, I'll repost it here. I have described how his pain perceptions are skewed. Someone who doesn't experience pain as typical people do can hardly be "tough loved" into feeling pain. Similarly, "mollycoddling" or "psychological conditioning" doesn't explain why someone would have a rotten tooth for months or serious abscesses without complaining of pain or discomfort.
Many people who are autistic do have sensory problems which make having a haircut a difficult experience, adults as well as children. While Gedrene has been able to overcome the problems he has had, that doesn't mean that other people can do the same, nor does it mean that other people don't try.
My son, who is diagnosed with Asperger's under the WHO ICD-10 criteria, and who has been additionally assessed separately as having complex sensory processing difficulties, does have problems associated with having his haircut. This has been an issue since he was a toddler, well before we were aware that he was on the Spectrum or had particular sensory issues. As far as having his hair cut or not, I am not particularly bothered. He is now 9 years old, the same age I think as the child in the photograph, and has decided to have his hair longer and cut his fringe himself, with help from me.
What is more concerning is the difficulties he has with dental treatment, and I am pretty sure but I'm not going to check, that I've seen a number of people here commenting that the sensory issues which make haircuts difficult also make dental check-ups and treatment difficult.
I can only speak to my son's experiences, but I can assure you that these problems cannot be overcome simply by gritting one's teeth (ha!) and getting on with it. When he was 5 years old he had two huge abscesses in the gum above his middle upper incisors. The abscesses were so large that they obscured his front teeth, but my son experienced no pain at all, not even discomfort. His sensory processing issues, which are very real, are such that his pain perception is distorted. He felt no pain from a dental problem which most people would find excruciating, but he could not tolerate the dentist touching his mouth to examine him.
We have a very good, patient and calm dentist, who didn't attempt to force treatment on my son. It wouldn't have been possible anyway to do that as it would have caused more harm than good anyway. My son was well aware that he needed to have this problem dealt with, and that the milk teeth should be extracted. On two occasions he decided that he would be able to go ahead with the treatment, and the dentist gave us an appointment at very short notice when my son was himself motivated to go ahead. On both occasions, the same thing happened. As soon as the dentist attempted to carry out an initial examination my son freaked out.
This is a child who is intelligent, articulate and aware of the need for good dental health and the advantages of the treatment being attempted, but no matter how much he tried and how well motivated he was - it was impossible. We had to rely on intermittent courses of antibiotics to treat the abscesses while we waited for the milk teeth to come out in their own time.
My son currently has a very rotten molar, which will need to be extracted. Dentists in Scotland don't administer anaesthesia, so he has been referred to the paediatric dentist at the local children's hospital to have the tooth extracted under a general anaesthetic.
His sensory processing issues are very real, not the result of "mollycoddling" and not something which can be overcome by "tough love" or determination. I don't think you fully understand what is meant by sensory processing or sensory integration dysfunction. Gedrene talks about having overcome particular fears - that's not what this is about.
Which is built on the presumption that because you are parents, and the second presumption that because I overcame it then it cant be the same thing, that I must be wrong and you must be right. But given that the lady who was on earlier has already long left and I decided to stop I don't know why you're arguing about it.
And? I never debated that. I just said that it was easy to overcome.
Also just because I am not someone's parents doesn't give me any less of an insight in to what might help, especially as what I am telling you to do was advice, not an obligation. Giving advice is not presumptuous. You can say you tried it, but saying that just because your someone's parents doesn't make what you say more viable. Not that this seems incredulous when you remember that I had similar issues and they were overcome easily by controlled confrontation.
As for the haircut, or lack of it, for many aspies their sensory sensitivities can make having a haircut an uncomfortable or even painful experience. Going to a salon can be overwhelming because of the physical and social contact, and the noise and smells can simply be too much to handle.
No, no and no. Unless you have some added aversive phobia none of this actually happens to people like me. The only reason otherwise I can think of is that they are told that it is the case about themselves at which point they believe it and it comes true. Going to a salon or hairsdresser's for me or my friends or a barber's has never been an overwhelming experience. I could only imagine that it would otherwise happen to a kid who was mollycoddled. Psychological conditioning is more to blame for our problems than any inherent disorder.
You keep talking about "us" and "our problems" and "people like me". You seem to be claiming for yourself the personal and group identity of an autistic person yet you don't yourself experience many of the difficulties experienced by autistic people. I don't doubt that people "like you" have no sensory processing or sensory integration problems, but many people on the Spectrum do.[/.quote]
This whole argument is based on your inability to see that I don't have these 'sensory integration problems' not because I never had them, but because I confronted them and never let anyone decide that I couldn't deal with them. Referencing myself as a reference point by the way doesn't require an interpretation that calls it some sort of projection upon others. It's because I don't like the word Autism or Asperger's syndrome. Autism was originally a word to describe narcissistic schizophrenia and it implies a rigid and unchangeable detachment from the world that I find is a complete load of sociological tripe. And again you presume that I did not have issues because I don't have them now. This rigid-mindedness about seeing everything psychological in 'autistics' as unchanging is infuriating.
Your response is based on the inability to read what I have already written several times and a pointwhich people continue to ignore at their own peril. I confronted these issues and they crumbled early and quickly.
First: When did you actually talk about rotten teeth or abcesses before now? Second: If what you say is true then why did it take months for a mother to notice her son's rotten tooth and abcesses? A son she presumably is in close contact with most of the time. Third: When do serious nerve disorders count as autism? Fourth: Is everything your son has put under the umbrella of autism?
Many people who are autistic do have sensory problems which make having a haircut a difficult experience, adults as well as children. While Gedrene has been able to overcome the problems he has had, that doesn't mean that other people can do the same, nor does it mean that other people don't try.
And nor does it mean that other people do try or indeed that other people do the same and to be honest I have never heard anyone say such things could be easily overcome EVER on this forum. If the only complaints you have are that saying that you take exception to my advice because you are parents, because I am to presume that you did everything already and because it might not work, then I still have no compunction telling you the advice.
And the problem here is that I might have been approached in the same way and never made to challenge my own issues because of an argument from authority and that would have only reinforced a belief that is not as concrete as people want.
Nice to know that he is trying his best to overcome any difficulty by any means he sees fit and that his mother supports him in this affair.
Yet again you say this despite the lack any idea of the severity of my own issues. And if it's your son's responses that you interpreted as proof of this then that is so vague as to be irrelevant. I don't get the dumbing down of feeling in the buccal cavity though. That's beyond strange.
Such extreme inability to feel pain in one's teeth doesn't sound like 'autism'. It really does sound like some nervous issue for which I am not qualified to diagnose. And why were they allowed to get so large?
Oh? That sort of vague evaluation doesn't give an adequate explanation as to a cause. If what you are saying is true then this should be listed as another disorder, not some form of autism. Comparing that to the majority of what most people go through in their lives like me is negligently inexplicit.
Because you say so, and also by misreading what I said. not that your son isn't already asking you to do what you said in a way by asking for a controlled attempt to overcome his problem through you cutting his fringe.
Freaked out sounds psychological and thus not fixed or impossible to overcome. Also most abcesses tend to hurt when they are fiddled with and not before hand.
Your son's personality, though he sounds nice, doesn't affect my argument, not that I hadn't already give it up long ago.
What? Another rotten milk tooth? That your son has so many abcesses, that they are allowed to get so large, that they are somehow obscuring your son's teeth and that his milk teeth also go rotten has some very dark implications. Exactly how good is your son's dental hygeine? This is sounding amazingly suspicious.
Gedrene, whether you realise it or not, you are not aware of the full extent and impact of the sensory processing difficulties experienced by my son and others on and off the Spectrum. You will find information relating to it on the NAS website which I link to here.
There are many threads on WP about the type of difficulties caused by sensory processing or sensory integration problems.
My son was diagnosed according to the WHO ICD-10 criteria which focus solely on communication difficulties. As I understand it, many of his sensory and motor difficulties would have been included in an assessment under the DSM. As it is, he was referred to Occupational Therapy for a separate assessment for the sensory issues, which include flapping, head-banging, poor co-ordination, balance and muscle tone. He cannot ride a bicycle or go a swing on his own.
None of these issues, singly or in combination, are at all unusual for someone on the Spectrum and if you look you will references to each of these somewhere on WP.
His abscesses were more than likely caused by his propensity to grind his teeth, and before his milk teeth at the front came out on their own he had ground them down so much that they crumbled or broke off at gum level. He wasn't agitated because his abscesses were being touched by the dentist, he became agitated when the dentist put his fingers either side of his mouth to begin treatment. It was the dentist, not I, who determined that treatment was not possible. I noticed the absesses at an early stage, but as they could not be treated in the usual way they did get bigger before they got better.
He has had one rotten milk tooth, the molar. I check his mouth periodically, but this is not particularly easy and that tooth isn't readily visible being closer to the back. He first reported pain at the end of February - the pain being caused by an infection and exacerbated by his grinding his teeth in his sleep - at about 4am. That was the first and only time he has complained of pain in that tooth. The infection was treated and hasn't recurred. We saw the dentist later that day and he referred my son to the paediatric dentist. I took him to an appointment there at the end of March, but the x-ray machine was broken, so no treatment was scheduled until an x-ray could be done. After I made some phone calls and wrote to them he was given an appointment last month which he attended and had the x-ray. He is still waiting for treatment, I check on the tooth from time to time, and he is not experiencing any pain at the moment. Last week, I got in touch with our own dentist to see if he can move things along as it is not satisfactory that this is taking so long.
Gedrene, please do some reading on sensory processing difficulties and their close association with autism.
Marcia, and I don't know whether or realise it or not but you should, your arguments have been so vague and your descriptions of what goes on based on such jumps between intuition and what is considered official and your arrogation over what I feel so presumptuous that I can clearly say that you have no idea where I am coming from.
None of which so far actually cut away the ideas I had, your only arguments being that you were right and I was wrong because you were your son's mother and because officialdom said so.
I don't doubt that people flap their hands with no reason whatsoever, but given that you were talking about your son not being able to feel two abcesses next to his front teeth that partly covered his front teeth I find the generalization here quite criminal.
What? That doesn't sound like autism. That sounds like a pain receptor autoimmune disorder, which supports my idea that when somebody calls a child autistic then every problem the child has is autism, no matter how generalized the term autism has to become in the process. This sort of diagnosis system is sloppy. And I'll have you know that grinding your teeth to stumps is not well documented at all, anywhere.
So there was nothing you could do and in the meantime they managed to obscure your view of your son's front teeth. One question, how did they go in front of his teeth if it was because he ground them down?
At 4am? How would you know that your son ground his teeth at 4am all the time? And you said about milk teeth and front teeth. Front teeth aren't hard to find.
Gedrene, please do some reading on sensory processing difficulties and their close association with autism.
Marcia, quit presuming to know what I do and do not experience and how and how not these things relate to your son. To be honest grinding one's teeth down to stumps and inability to feel pain is a sign of grave peripheral neurological damage, not autism. This sort of horror story is not well documented. I don't see why your doc is delaying anything either. This is just getting more suspicious.
http://www.autismuk.com/?page_id=104#9
The field of autism has known for many years that the sensory processing systems of people with autism are unusual. We see people with very unusual food preferences, people who spend their time watching their fingers flick, or rubbing textures against their cheeks, or listening to unusual sounds very close to their ears so that they can also feel the vibrations. We know people with autism who don’t respond to sounds the ways others do, causing others to think they are deaf when they have perfect hearing acuity. Some people with autism seem to confuse the feelings of being pinched with being tickled, or appear not to feel pain at all. Others choose to rock back and forth for hours in repetitive patterns. In many different ways, people with autism show us that their differences begin at the level of processing some or all the sensations that impinge on their body every waking minute.
The field of autism has known for many years that the sensory processing systems of people with autism are unusual. We see people with very unusual food preferences, people who spend their time watching their fingers flick, or rubbing textures against their cheeks, or listening to unusual sounds very close to their ears so that they can also feel the vibrations. We know people with autism who don’t respond to sounds the ways others do, causing others to think they are deaf when they have perfect hearing acuity. Some people with autism seem to confuse the feelings of being pinched with being tickled, or appear not to feel pain at all. Others choose to rock back and forth for hours in repetitive patterns. In many different ways, people with autism show us that their differences begin at the level of processing some or all the sensations that impinge on their body every waking minute.
This only further deepens the issue at hand! People are just saying thousands of different things are autism instead of dealing with each issue seperately or at least in more rational groups.
It is a massive failure of any human mind to try and generalize anyone under very large groups in medicine, because it then shows a complete inability to actually do anything to help the person and indeed may lead to people confusing alredy established and separate disorders with autism.
Officialdom as a method of explaining anything as final and indisputable is false. One cannot just quote the DSM or something else and hope to say that's that.
The field of autism has known for many years that the sensory processing systems of people with autism are unusual. We see people with very unusual food preferences, people who spend their time watching their fingers flick, or rubbing textures against their cheeks, or listening to unusual sounds very close to their ears so that they can also feel the vibrations. We know people with autism who don’t respond to sounds the ways others do, causing others to think they are deaf when they have perfect hearing acuity. Some people with autism seem to confuse the feelings of being pinched with being tickled, or appear not to feel pain at all. Others choose to rock back and forth for hours in repetitive patterns. In many different ways, people with autism show us that their differences begin at the level of processing some or all the sensations that impinge on their body every waking minute.
This only further deepens the issue at hand! People are just saying thousands of different things are autism instead of dealing with each issue seperately or at least in more rational groups.
It is a massive failure of any human mind to try and generalize anyone under very large groups in medicine, because it then shows a complete inability to actually do anything to help the person and indeed may lead to people confusing alredy established and separate disorders with autism.
Officialdom as a method of explaining anything as final and indisputable is false. One cannot just quote the DSM or something else and hope to say that's that.
No one has a good handle on what autism really is. Not likely they ever will. Too many environmental factors ranging from social experience, cultural, and cultural by products impact what already exists genetically.
Psychology is a rough estimation of human behavior judged from fallible human observance, which always has it's own preconceived biases, from each unique human experience. It's all we have at this point, though. Improvement may come with time, but it can never be an exact science, because human nature changes constantly, behavior is always a moving target.
Studies have been done with chimpanzees reared away from parents in nurseries, that have shown socialibility problems that mimick some of the human characteristics of autism; there are so many factors in life that influence humans this way, it is hard to say what pushes one to distress or success regardless of their genetics.
Regarding sensory integration problems, at least for myself, I know tactile sensitivity to be an issue that has real biological underpinnings. It was my first memory as a child and an overwhelming one.
The list provided is just a general list of behaviors observed with sensory integrations issues among people diagnosed with autism to show the variation that exists. No two autistic individuals are the same.
A puzzle icon for autism is extremely relevant because of the inherent complexities of the condition. In your post you state a hard reality, that is true.
Explains why so many mistakes have been made along the way too, in trying to provide help.
People are dealing with it the best they can, but humans are prone to errors, in areas where no clear path is established.
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