Page 1 of 4 [ 56 posts ]  Go to page 1, 2, 3, 4  Next

AliPasha
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 11 Feb 2011
Age: 32
Gender: Male
Posts: 34

18 Feb 2011, 2:39 pm

I would like to know why people hate Autism Speaks out of curiosity, not that i really care for the organization.



Woodpecker
Veteran
Veteran

User avatar

Joined: 18 Oct 2008
Age: 52
Gender: Male
Posts: 2,625
Location: Europe

18 Feb 2011, 2:52 pm

Oh ! There are quite a few reasons. One of the best reasons to dislike autism speaks is that they issued a video in which a mother talked about how she considered killing her autistic daughter by driving off a bridge while her daughter was in the room. To me this is in very bad taste.


_________________
Health is a state of physical, mental and social wellbeing and not merely the absence of disease or infirmity :alien: I am not a jigsaw, I am a free man !

Diagnosed under the DSM5 rules with autism spectrum disorder, under DSM4 psychologist said would have been AS (299.80) but I suspect that I am somewhere between 299.80 and 299.00 (Autism) under DSM4.


ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 44
Gender: Male
Posts: 3,546
Location: Humboldt County, California

18 Feb 2011, 5:51 pm

It is likely they were showing how autism effects some parents lives that they are desperate for help and research. Bad taste yes but that sort of idea to kill people is not supported by Autism Speaks.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


Delirium
Veteran
Veteran

User avatar

Joined: 24 Nov 2007
Age: 35
Gender: Female
Posts: 1,573
Location: not here

18 Feb 2011, 10:37 pm

Most of their money goes towards fundraising and salaries instead of helping autistic people, and they focus more on a cure than actually improving the lives of people with autism. Since autism can't be cured, throwing money at a cure is a waste of resources that could be better spent helping autistic people.


_________________
I don't post here anymore. If you want to talk to me, go to the WP Facebook group or my Last.fm account.


ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 44
Gender: Male
Posts: 3,546
Location: Humboldt County, California

18 Feb 2011, 10:49 pm

Most of what you said is repeated propaganda that is peer pressure based. A cure means to develop treatments to improve quality of life of the real-lives of people with autism. That directly assists in improving the lives of people with ASD. As far as salaries I agree, like many non-profits they make to much money in the name of a cause. However maybe we might find that the ones that make allot of money have very long-days and travel all around. Still to me a good cause needs people that are committed that do not want that much money in the first place.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


Woodpecker
Veteran
Veteran

User avatar

Joined: 18 Oct 2008
Age: 52
Gender: Male
Posts: 2,625
Location: Europe

20 Feb 2011, 3:36 am

ci wrote:
Most of what you said is repeated propaganda that is peer pressure based.


I have seen the autism speaks film in which a mother discusses the idea of murdering her child, so this is not a repeated bit of peer pressure based anti autism speaks propaganda. Also autism speaks have done other things which irk the autistic community.


_________________
Health is a state of physical, mental and social wellbeing and not merely the absence of disease or infirmity :alien: I am not a jigsaw, I am a free man !

Diagnosed under the DSM5 rules with autism spectrum disorder, under DSM4 psychologist said would have been AS (299.80) but I suspect that I am somewhere between 299.80 and 299.00 (Autism) under DSM4.


ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 44
Gender: Male
Posts: 3,546
Location: Humboldt County, California

20 Feb 2011, 12:02 pm

Sure it is because I've seen it repeated time and time again and no one is interested in debating logically. Also the video you speak of was investigated and Autism Speaks does not support murdering people with autism. It was to show the desperation of a parent in need of help. So you can keep on manipulating, inventing into and trying to control other organizations all you want but the more logical debate is avoided the more absurd pride views appear. You simply want win the arguments and with the same arguments over and over. Mind you I've kept up with pride for 8-years and many times unless you agree with constricted view points and don't think for yourself on key issues you are banned from online social groups, called "one of them the N.T'S" and other persecutory horse pooh.

It's not quite silly, much more absurd and a lot more just political.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


Woodpecker
Veteran
Veteran

User avatar

Joined: 18 Oct 2008
Age: 52
Gender: Male
Posts: 2,625
Location: Europe

20 Feb 2011, 1:09 pm

while autism speaks has not explicitly encourgaed murder (it is still a crime to incite murder) that fact that they published that bit of footage where the mother discussed killing her child does say a lot to me about their morals. If I was the film maker, I would have edited out that part of the interview in the interests of good taste and morals.

Freedom of speech extends to people who disagree with me, so you are free to express your ideas but I would suggest that you read the following web pages

http://autisticbfh.blogspot.com/2006/07 ... ideas.html
http://autisticbfh.blogspot.com/2009/09 ... utism.html


_________________
Health is a state of physical, mental and social wellbeing and not merely the absence of disease or infirmity :alien: I am not a jigsaw, I am a free man !

Diagnosed under the DSM5 rules with autism spectrum disorder, under DSM4 psychologist said would have been AS (299.80) but I suspect that I am somewhere between 299.80 and 299.00 (Autism) under DSM4.


ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 44
Gender: Male
Posts: 3,546
Location: Humboldt County, California

20 Feb 2011, 1:13 pm

Symbolic language is protected. The mother was exaggerating to get attention which succeeded with your help and others. Best thing to do is to ignore such in the future. In public relations both sides have their goof ups like calling compassion pity which is down right mean, wanting to express extreme thoughts to murder just to make a point strategically without intent to follow through and so on so to ask for help like respite. It is my belief not all parents are able to parent individuals with autism and the world is not a perfect place for people with autism.

Nathan Young


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


agent5959
Emu Egg
Emu Egg

User avatar

Joined: 3 Nov 2010
Gender: Male
Posts: 2

22 Feb 2011, 10:23 am

Woodpecker wrote:
fact that they published that bit of footage where the mother discussed killing her child does say a lot to me about their morals. If I was the film maker, I would have edited out that part of the interview in the interests of good taste and morals.

The logical part of me wonders why "good taste and morals" should prevent a documentary from showing a woman's raw emotions to help put across the difficulty of having an AD child in a world that hasn't caught up with the spectrum yet. Maybe hearing enough of that will show people that they need to catch up with us and stop pretending that we're damaged.



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 44
Gender: Male
Posts: 3,546
Location: Humboldt County, California

22 Feb 2011, 12:05 pm

Difference is a matter of perception to and disability can be a matter of cultural perception as well. There are two important items to be concerned. Diversity and quality of life. Society defines disability to assist yet society further impairs difference with a lack of inclusive acceptance at times. Special interest would greatly benefit from autism not being taken seriously just like other special interest would benefit from it being taken very seriously. Given the nature of the problem there is no balance both sides can agree on universally.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


raisedbyignorance
Veteran
Veteran

User avatar

Joined: 28 Apr 2009
Age: 41
Gender: Female
Posts: 2,225
Location: Indiana

22 Feb 2011, 2:35 pm

Delirium wrote:
Most of their money goes towards fundraising and salaries instead of helping autistic people, and they focus more on a cure than actually improving the lives of people with autism. Since autism can't be cured, throwing money at a cure is a waste of resources that could be better spent helping autistic people.


This. And I despise the notion of an organization that victimizes the parents while villainizing the children who are the ones actually suffering from the condition in question.



Asp-Z
Veteran
Veteran

User avatar

Joined: 6 Dec 2009
Age: 32
Gender: Male
Posts: 11,018

22 Feb 2011, 3:10 pm

Click here, that site will tell you everything you need to know.



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 44
Gender: Male
Posts: 3,546
Location: Humboldt County, California

22 Feb 2011, 4:22 pm

Propaganda vs. Propaganda.

Greed vs. Envy.

Listen folks what is needed is a full spectrum consideration of both sides ethically, socio-politically and so on. I can help with this but anything other then a harsh analysis technique for all sides is going to be fruitless. Just because one person that happens to be labeled as of autism disagrees with certain kinds of research also does not mean another person with autism does not agree and so on. Frankly I'm tired of the assumptions, unethical portrayals by both sides and the out right lying to preserve core beliefs. I told you folks before and I will tell you again. You are going to end up alienating each-other. The public is not stupid and will not be manipulated.

Any further lawsuits for freedom of speech contact me 707-215-9657 and I will take care of it. I will handle the public relations if an individual chooses. I also have other important projects and these issues cannot take to much time away. Fractions of the autism community I believe are being self-destructive and it is not in the best interest of individuals with disabilities.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com


Douglas_MacNeill
Veteran
Veteran

User avatar

Joined: 10 May 2007
Age: 61
Gender: Male
Posts: 1,326
Location: Edmonton, Alberta

22 Feb 2011, 6:08 pm

Delirium wrote:
Most of their money goes towards fundraising and salaries instead of helping autistic people, and they focus more on a cure than actually improving the lives of people with autism. Since autism can't be cured, throwing money at a cure is a waste of resources that could be better spent helping autistic people.


To phrase it another way:

1. Autism Speaks has little or no use for us (people with autism), so we have no use for Autism Speaks.
2. Autism Speaks unjustly claims to speak for persons with autism.
3. The focus that Autism Speaks places on autism and its horrors alienates it from any idea of hope
for the person with autism, or hope held by the person with autism.
4. Autism Speaks tramples on our hopes and dreams; I cannot forgive Autism Speaks for this wrong.



ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 44
Gender: Male
Posts: 3,546
Location: Humboldt County, California

22 Feb 2011, 6:13 pm

I think people make things up, exaggerate and assume to much. Autism Speaks since the begining has been attacked by high functioning individuals and always with political hostility with folks playing the victim-hood bit for political reasons. I did one of the first interviews during the transition from CAN to Autism Speaks and with the anti-cure perspective. Anti-cure simply won't win and neither will pro-cure should it force cures. It's best to think outside of the box and any attempt to remove the rights for advancing treatments by means of research will be crushed politically and some folks got to realize this despite the ego thing saying autism is strictly an evolutionary "thing" and or part of "God's" creation. Human rights go both ways and the public will not be forced to view autism a certain way because someone feels insulted and wants to control how others think..

To me it doesn't matter how staburn people get. In the end there is the law and ethics. People can believe they are hated and talk themselves into this and others all they want. It comes down to individual human rights. Attempt to evade these rights with peer pressure all you want but folks will be put in there place.


_________________
The peer politics creating intolerance toward compassion is coming to an end. Pity accusations, indifferent advocacy against isolation awareness and for pride in an image of autism is injustice. http://www.autismselfadvocacynetwork.com