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mrpints2
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07 Dec 2009, 7:47 pm

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Like other good things, the Americans with Disabilities Act has been badly misused. Schools get more funding when more students are diagnosed as having some kind of disability. If the funding is used to build in wheelchair ramps or pay for
prostheses, few parents would complain. Unfortunately, funding may be used and secured for the purpose of diagnosing normal, healthy students as "disabled."

Probably the most obvious and common misdiagnosis being made in the public school system is hyperactivity, or Attention Deficit and Hyperactivity Disorder. Genuine, disabling hyperactivity exists, but it is not common; if a school has a thousand students, it may have one student who really can't sit still or focus his mind when he wants to, or it may have none. If a school has a thousand students who are sitting in forty classrooms, ordered to pay attention to forty teachers, however, it may well have nine hundred and fifty students who are suffering from normal, healthy boredom.

Boys typically react to boredom in obvious ways like fidgeting, chattering, and picking fights with one another. Girls are typically better at "spacing out" and entertaining themselves with their own thoughts. Before schools discovered the benefits of ADA, teachers were clamoring for the right to medicate students who distracted the class. Now, thanks to ADA, some school staff want to label and medicate bright, quiet little girls too.

However, since you're reading this on a computer, you may be more directly concerned with a different diagnosis that more easily fits the kind of people who tend to like computers. These days, plenty of people who would never be mistaken for computer "geeks" are using computers...but the technical term for "geeks" is being stretched to include just about any child who has the ability to learn how to use a computer. Thanks to ADA, the mere fact that you've chosen to sit down and read may be used to support a claim that you have Asperger's Syndrome.

Years ago, AC published a revealing article about the kind of student who is getting this diagnosis these days. The student "wasn't social" in kindergarten. The student liked to read, but didn't do well in elementary school. In high school, the student felt awkward and insecure about dating.

The article has an unfinished look. As I read it I kept wondering when the writer was going to mention anything that lay outside of the normal range of childhood and adolescent behavior. She never does. The article does leave room for questions of interpretation; does the statement that the student disliked noise mean that the student didn't enjoy primary school (very few children do), or that the student felt choked and blinded and ran howling out of the classroom (as someone who could reasonably described as "having a mild form of autism" would do)? The writer may be understating the facts, or may have been leading up to a scene that would have shown "autistic spectrum" behavior, but what she describes is what my teacher training course presented as a normal, typical, underachieving student.

Accepting a diagnosis that, in order to encompass you or your child, has to be broadened to the point of meaninglessness, may be tempting when it reduces the "penalties" for not doing something you or the child may not enjoy doing. However, long-term consequences of accepting a label like ADHD or Asperger's Syndrome may be less desirable. In unstable economic times, the long-term outlook for people with disabilities is unlikely to be as pleasant as it may seem now.

One of the least bad, yet most likely, outcomes of defining yourself or your child as an "Aspie" would be that you or the child would be cut off from what might be your true demographic group: people who do not have Asperger's Syndrome, but do have High Sensory Perceptivity (HSP) and/or a long brain stem (LBS), or who are "gifted and talented." These traits are not, and can't reasonably be, classified as disabilities. Not only are they as natural and permanent as eye color; they may also be among the factors that allow some people to enjoy unusually long, healthy, active lives and rewarding careers.


Maybe this has been posted before? I think it's interesting anyway. Is it a valid look at the subject or no?



mrpints2
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07 Dec 2009, 7:51 pm

It won't let me post the link but you can google "Differences Among Asperger's Syndrome" if you want to read it.



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07 Dec 2009, 8:34 pm

The danger of misdiagnosis. A lot of "professionals" tend to have a misguided and simplistic view of the differents mental "disability" (or differences). The misdiagnosis is among the reasons I dislike the nerd/geeky/smart stereotype of aspergers.


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makuranososhi
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07 Dec 2009, 8:47 pm

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Priscilla King is a free-lance researcher, writer, and Bible maven. Her lifetime career of odd jobs has supplied much of her writing material. Her favorite odd job is helping other writers produce books.


Just a few notes on the author of the excerpt, which can be found here: "Article"


M.


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07 Dec 2009, 9:23 pm

It's easy to claim that something is overdiagnosed if you don't have it or if you've been diagnosed with it. The people who write these articles haven't gone through their lives trying to figure out how to do the things everybody else seems to take for granted, desperately thinking that if only they try hard enough, try harder and harder and harder, maybe they won't fail at everything they try, wondering why they can't be normal, why they can't be good enough, and getting blamed for not being good enough.
It's a bit like being blamed for not being able to flap your arms and fly. It doesn't matter how hard you try, no matter how much you visualize yourself lifting off into the air, no matter how much you dream that you can do it, no matter how much you will yourself to sprout wings and fly, and no matter how much anybody yells at you and tells you that it's your fault that you're not soaring around like a bird, it's just to going to happen.
(I'm using a generic you there, not like you in particular...)



TouchVanDerBoom
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07 Dec 2009, 9:33 pm

Maggiedoll wrote:
It's easy to claim that something is overdiagnosed if you don't have it or if you've been diagnosed with it. The people who write these articles haven't gone through their lives trying to figure out how to do the things everybody else seems to take for granted, desperately thinking that if only they try hard enough, try harder and harder and harder, maybe they won't fail at everything they try, wondering why they can't be normal, why they can't be good enough, and getting blamed for not being good enough.
It's a bit like being blamed for not being able to flap your arms and fly. It doesn't matter how hard you try, no matter how much you visualize yourself lifting off into the air, no matter how much you dream that you can do it, no matter how much you will yourself to sprout wings and fly, and no matter how much anybody yells at you and tells you that it's your fault that you're not soaring around like a bird, it's just to going to happen.
(I'm using a generic you there, not like you in particular...)


You're great :D I wish I could remember that abbreviation that means "I agree with the points made in the above quoted post".



mrpints2
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07 Dec 2009, 9:38 pm

Maggiedoll wrote:
It's easy to claim that something is overdiagnosed if you don't have it or if you've been diagnosed with it. The people who write these articles haven't gone through their lives trying to figure out how to do the things everybody else seems to take for granted, desperately thinking that if only they try hard enough, try harder and harder and harder, maybe they won't fail at everything they try, wondering why they can't be normal, why they can't be good enough, and getting blamed for not being good enough.
It's a bit like being blamed for not being able to flap your arms and fly. It doesn't matter how hard you try, no matter how much you visualize yourself lifting off into the air, no matter how much you dream that you can do it, no matter how much you will yourself to sprout wings and fly, and no matter how much anybody yells at you and tells you that it's your fault that you're not soaring around like a bird, it's just to going to happen.
(I'm using a generic you there, not like you in particular...)


This is fair and well-stated, but do you think it really negates whether or not the author is right about overdiagnosis?



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07 Dec 2009, 9:42 pm

HSP should be another name for sensory integration disorder...

Anyway, everybody knows that you don't diagnose somebody if there's no significant impairment.

This all comes from the stereotype that a disability MUST be severe; that mild disabilities don't exist and that having a cognitive disability is rare and always obvious. This stereotype is false; there are far more people with mild, non-obvious disabilities than there are with severe, obvious ones.

What is "overdiagnosis"? Diagnosis of people who are not impaired? If so, why did they seek diagnosis? Or is it just diagnosis of people who aren't impaired enough to fit the prevailing stereotype of "cognitive disability"?

Actually posted about this on my blog a couple days ago--
The Normalization of Diagnosis


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Last edited by Callista on 07 Dec 2009, 9:47 pm, edited 2 times in total.

TouchVanDerBoom
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07 Dec 2009, 9:45 pm

mrpints2 wrote:
Maggiedoll wrote:
It's easy to claim that something is overdiagnosed if you don't have it or if you've been diagnosed with it. The people who write these articles haven't gone through their lives trying to figure out how to do the things everybody else seems to take for granted, desperately thinking that if only they try hard enough, try harder and harder and harder, maybe they won't fail at everything they try, wondering why they can't be normal, why they can't be good enough, and getting blamed for not being good enough.
It's a bit like being blamed for not being able to flap your arms and fly. It doesn't matter how hard you try, no matter how much you visualize yourself lifting off into the air, no matter how much you dream that you can do it, no matter how much you will yourself to sprout wings and fly, and no matter how much anybody yells at you and tells you that it's your fault that you're not soaring around like a bird, it's just to going to happen.
(I'm using a generic you there, not like you in particular...)


This is fair and well-stated, but do you think it really negates whether or not the author is right about overdiagnosis?


No. But I think for every person who's wrongly diagnosed, another person who desperately needs that help is overlooked.



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07 Dec 2009, 9:47 pm

Make that 2 votes for maggiedoll's description. You should get a copyright before someone snags it.....


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07 Dec 2009, 9:53 pm

I'm kinda looking funny at this statement (ah, since when do people with HFA fall over when you talk to them? For the most part, they may ignore you more than someone with AS, but this is usually as a child):

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"Aspies" don't have the major brain damage that may make a high-functioning autistic person lose balance and fall over if you speak to him or her, but the sense of "disconnect" is usually conspicuous to observers.


And this one is wrong:

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"Aspies" don't make friends, period.


Whilst I agree that introversion and AS can be mistaken in cases, but it's usually very easy to see run-of-the-mill AS and the other kinds of autism, and any professional worth his salt won't diagnose someone due to pressure from teachers and/or parents (not to say it's not done, but it's lacking ethics).



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07 Dec 2009, 9:55 pm

TouchVanDerBoom wrote:
You're great :D I wish I could remember that abbreviation that means "I agree with the points made in the above quoted post".

:D Aww, makin' me feel all warm and fuzzy! The abbreviation is QFT "quoted for truth" but a lot of the time I just write "^^THAT!"

mrpints2 wrote:
TouchVanDerBoom wrote:
This is fair and well-stated, but do you think it really negates whether or not the author is right about overdiagnosis?

No. But I think for every person who's wrongly diagnosed, another person who desperately needs that help is overlooked.

Lol, and now I get to say it! ^^That!

Like, the article mentioned how "Now, thanks to ADA, some school staff want to label and medicate bright, quiet little girls too." The author has obviously never been a little girl sitting in class, desperately trying to pay attention, being scolded for not being able to focus on all the seatwork, spacing out, not being able to keep up, being told that it's all her fault, wanting it to be over, to get out of that class that she can't focus on anyway, but knowing that now she's going to be forced to do that work at home, knowing the battle the whole evening is going to be as she tries to do homework that she can't concentrate on, only to have to get up the next morning and do it all over again.
It's not a bad thing that schools are finally realizing that kids who don't cause trouble can need help too. They spent so long ignoring any kid who wasn't causing trouble in class, it just bugs me to see an article make it sound like it's bad to acknowledge that a kid who isn't causing trouble can have problems too.



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07 Dec 2009, 10:03 pm

Hmm, the author seems to go to put a lot of effort into differentiating AS from other labels such as giftedness and "High Sensitivity." I think there's some stigma avoidance at work motivating the thinking. And if it really is 1% of of kids, and IIRC in the UK the measured and found it's about 1% of adults, then there really are just a lot of people on the spectrum.

And she provides no evidence about the contention that AS is overdiagnosed -- only explains why it would be if that way if it was known to be true. Sort of like arguments about economics or politics -- if it sounds compelling enough sometimes people will forget that you haven't actually shown it to be the case; but rather have made it seem like it must be.

And does the ADA actually directly effect school funding levels? And the ADA is also responsible for drugging little girls? WTF? And the "brain damage" quote, and etc. This piece seems to have an ill-informed author on a number of points.



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07 Dec 2009, 10:16 pm

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Whether real "Aspies" want friends or not is unclear.


Well . . . you could just ask a few . . .



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07 Dec 2009, 10:39 pm

I believe one must look at how these symptoms present in childhood. Many adults have learned to adapt, both through therapy, and because of consequences. This does not mean that they're no longer autistic, just better at masking symptoms.

I do not disagree that we have trouble forming relationships. Quite honestly, I blamed failed friendships and interactions on others. I could not see, and usually still can't, what I did wrong. I managed to marry, but I have what my family calls an odd marriage. My husband and I do not sleep in the same room, and he doesn't like to hug, kiss, etc... He does not expect praise, or for me to notice emotional needs. He does not have AS; he's simply stoic.

It didn't even occur to me, until I was an adult, that people might have feelings different than my own.I still have a great deal of trouble coddling people.

I do believe Aspergers is diagnosed in some children who do not have it. I am only concerned about that because identifying the true issue is the first step in helping a child. I do think, though, that some appear to be on a crusade against most who are diagnosed with Aspergers. I cannot think of a logical motive for such a tirade, especially if it involves lies (which some unstable people do). Perhaps they were told they have Aspergers, and deny it (extensive lying would most likely mean they are not Autistic), or, they believe themselves to have it, and want to be special.



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07 Dec 2009, 10:51 pm

granted the things said in that article were common of almost every person...(boredome in school, figeting, awkwardness in high school, dislike of loud noise) If those were the only symptoms I had, I probably would never have gotten my diagnosis. The things they don't mention are the hand flapping, other repetitive movements and stims, self injury, living in my own world 90% of the time. Those things are the real red flags to me. Not the other stuff.