eating disorders and asperger's
Brittany2907
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I read an article today written by a doctor who said that "anorexia maybe the female aspergers". I don't believe that is true, though. Although some of the symptoms are similar [not the actually eating part]. Like obsessive routines [such as excercise routines that CAN NOT be changed]...actual obsessions [with food, adding up calories, weighing ones self obsessively etc]. There are also similar brain patterns when asked certain things.
Here is the link to the article: http://www.timesonline.co.uk/tol/life_a ... 272080.ece
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soljaboi51
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Ravenclawgurl
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I suffered from a unclassified eating disorder for a number of years which was so severe that I didn't menstruate between the ages of 13 and 17. I recovered after spending some time at a psychiatric hospital.
I think there are more complicated factors involved in the development of an eating disorder than Asperger's itself, but as AS "sufferers" tend to be mentally ill in some way (depressed, most often), there is some relation as these illnesses can contribute to the development of an eating disorder.
I think in some ways eating disorders are a subset or manifestation of depression.
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Gastro-intestinal problems are also very common with Asperger's. If you couple that with sensory issues (textures and smells) and anxiety that can make heartburn and acid reflux even worse, you can have a pretty bad eating disorder. My son suffered from the above for many years before we found out that he has Asperger's. At one time, I did consider that he might have anorexia. Treatment for his anxiety, depression and acid reflux has helped tremendously and he is now healthy and at a good weight. He is also getting counseling for stress, anxiety and panic attacks, and has learned how to control some of those physical symptoms on his own w/out med's through relaxation techniques. Very, very helpful indeed.
hiunikel
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I think there might be a tendency towards forms of orthorexia (which is not yet recognized formally as an eating disorder).
If you couple the extreme diets often pushed at autistic people (and at many disabled people in general), with our obsessive tendencies and picky eating, you could easily end up in a situation where someone is fanatical about staying on diets that are not actually necessary for us. Especially if instead of just being a picky eater someone found a food-fad type theory to explain the foods they are picky about.
I was orthorexic for some time. I am not now, and the only foods I avoid are ones that are actually medically necessary (such as foods that make me feel crappy from reflux or something). Despite not actually being orthorexic anymore, I still find it very easy to get stuck on a limited and unhealthy diet just by habit of eating the same thing over and over and over and over again. And I still have worries about foods, they're just milder than they were before.
The Orthorexia Home Page says that orthorexia is an eating disorder that is not about failure to eat, and not about binging and purging, but rather about an obsession with "proper" eating that becomes so intense that it takes over a person's life and interferes with other aspects of it. In severe forms a person can convince themselves that almost all foods are bad for them and starve to death, and at that point it resembles (and can be mistaken for) anorexia.
That homepage is written by the man who coined the term, who is a recovering orthorexic himself.
While I am not sure I like the medicalization of what's partially a social phenomenon, I find it a really useful concept in understanding how I used to feel (and occasionally catch myself feeling in a much milder way) about food. A lot of stuff about orthorexia focuses on fad diets that anyone can get into (extremes of fruitarianism, raw foodism, etc), but it can also happen to people who imagine themselves (or have been told) to be "reacting to" or "allergic to" lots and lots of foods, including people who have genuine health problems but every time they flare up they stop eating whatever they had been eating when it got worse, assuming that it was the food causing it, etc.
The man who coined the term said that at one point he had a patient who wanted to find a diet where she could manage her asthma without the medications she took for it. They identified a few foods to stop, but she just kept going and going. He describes what happened when she came back to his clinic:
She was pleased with her improvement and referred many patients to me. But I began to feel ill whenever I saw her name on my schedule. The first rule of medicine is "above all, do no harm." Had I really helped Andrea, or had I harmed her? If she had been cured of cancer or multiple sclerosis, the development of an obsession might not be too high a price to pay. But when we started treatment, all she had was asthma. If she took her four medications, she also had a life. Now all she has is a menu. She might have been better off if she had never heard of dietary medicine
He also talks about orthorexia in places like communes he was at, where people were trying out all sorts of vaguely religious theories about food and feeling holier-than-thou and "more spiritual" when they ate "better" than other people. And people who were so into "health food" that they became obsessed with eating and not with living.
Another website gives the following possible signs of orthorexia:
* Spending more than three hours a day thinking about healthy food
* Planning tomorrow's menu today
* Feeling virtuous about what they eat, but not enjoying it much
* Continually limiting the number of foods they eat
* Experiencing a reduced quality of life or social isolation (because their diet makes it difficult for them to eat anywhere but at home)
* Feeling critical of others who do not eat as well they do
* Skipping foods they once enjoyed in order to eat the "right" foods
* Feeling guilt or self-loathing when they stray from their diet
* Feeling in "total" control when they eat the correct diet
Quoting another article:
In his practice, Bratman tells WebMD, he has seen many patients with this condition. "I saw two or three people a day who would ask how they could be stricter in their eating."
Very often, Bratman says, the food preoccupation stems from a problem like asthma. "Among those who believe in natural medicine, the progressive view is to avoid medicine, which supposedly has side effects, and instead focus on what you eat. But everyone misses the fact that if you get obsessed with what you eat, it actually has a lot of side effects -- mainly, the obsession itself."
I never felt better than people who didn't eat like I did, but I definitely felt like I was doing something good (beyond usual good) by eating a certain way, so I sort of know what they mean there. And that's a pretty deluded way to feel considering all the problems in the world that eating that way doesn't solve.
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I have just come across exactly this website and set of articles after a friend mailed me an article from a newspaper about it. Steven Bratman's original essay on orthorexia is at: http://www.orthorexia.com/?page_id=6
On the one hand I can frame my interest in diet as I usually do, without thinking much about it, as a classic AS "special interest" and/or mental health tool/"survival plan" which is what it has seemed to me to be ( for most of the last 18 years anyway since a five-day exclusion diet to test for food intolerances gave me my first moment of mental and emotional peace/relief in over a decade, and led to my experimenting with various diets, and sticking to a gf diet this last three years ) ...
... but I still remember how for two-three years, ( until six months prior to going on that diet ), I thought that my increasingly reckless spending, huge debts, reckless hitching alone in Europe, heavy drinking, reckless sex with strangers, increasingly aggressive arguments with friends who became ex-friends as a result, reckless throwing away of my belongings, racing thoughts and hyper-rapid speech, reckless chucking in of jobs, university courses, etc, aswell as homeless begging round France, less and less sleep, and dark nights of suicidal despair, aswell as crazy ones of drink and dope and dancing and euphoria, were simply signs of an awakening, an inner revolution, a creative wave, ( I painted pictures on the walls of rooms in rented houses, and drew hundreds of pictures in psychedelic colours, and wrote dreamlike stories, etc ), a new and more wonderful exciting me ... when it was actually hypomania/mania and depression, mood disorder ... ... ...
... Steven Bratman makes it clear that he is not suggesting that all diets are dysfunctional, just that if maintaining, planning and cooking for a diet, and/or just thinking and worrying about eating the right foods, eg. endlessly researching and testing different ones, etc takes up the majority of one's life, takes priority over almost everything else, then it might reasonably be called a disorder ...
But part of being on the autism spectrum is spending what seems to other people like unhealthy, abnormal, etc amounts of time and energy on one particular subject/activity ... and so long as it doesn't make you ill ( ironically very possible when seeking the perfect diet ), there is nothing to worry about. ... What if it seems to be causing anxiety? ... Is that when it falls into the category of OCD?
It seems to me that this falls into the same sort of category as autism itself; ie. if it causes impaired social relationships, career progression, etc then it qualifies as a disorder. If not, then not! :lol I don't think that my special interest in diet causes me any impairment, ( the reverse most of the time; I think it helps me ), but I think it does, sometimes/frequently ( ? ), cause me anxiety.
How do you know if something is "unhealthy"? ... If it "hurts"? No, pain can be a sign of a return of feeling. It's just a value judgement, a negative one. ... ... ... If what you gain from something is worth less than what it costs you? ... Maybe. Like Valerie in the example anbuend quoted, who just wanted to stop needing medication for her asthma, and ended up almost never going out.
Hmmm.
.
No, but that whole obesity issue really, really made me freak me out for a while and I guess I was on the verge of developing one and I would punish myself whenever I ate too much by running and exercising constantly until the guilt went away.
Now I am back to normal and I actually did lose 25 pounds after I learned not to be so hard on myself and I am where I am supposed to be as far as weight is concerned, but I still constantly feel that need to move and exercise which really bothers me when I am at school. I have always been a fairly healthy eater, I was never picky even as a kid, though sometimes it can be too much of a good thing.
Last edited by slovaksiren on 20 Oct 2010, 3:24 pm, edited 1 time in total.
Female AS and I've been diagnosed with an eating disorder before. I've always had a history of very limited/picky eating and found enjoyment in comparing food labels. When I ate M&Ms as a kid I'd have to graph the colours.
I do think it can be a risk factor for an eating disorder: obsessive behaviour, possibly low-selfesteem from bad experiences with people, food intolerances. I don't think most people with eating disorders are autistic, just that it can happen certainly.
My pregnancy cured my eating disorder. I hope it won't come back after the baby comes. Maybe my breast feeding will keep it away since you have to eat normally to make the milk.
But before that I suffered from it to keep my weight down. Now I eat a lot more and don't skip any meals. But thanks to my weight obsession, I eat healthy and stay away from lot of sweets. Maybe that's why I don't have food cravings? Only thing I crave is chocolate or sweets when I see them but I have always craved it because I love sweets and chocolate. But I don't go buying them or eating a lot. And I am supposed to be jealous when a woman on Babycenter says she had a pumpkin pie or a whole box of donuts? Why would I be jealous that a woman had a lot of that stuff if it makes you put on weight that be hard to lose after you have the baby? I don't understand why other women there say they are jealous when someone brags about having a sweet or lot of them.
Another problem I have is not knowing I am hungry until I am starving. I also don't even know if I am just bored or is it hunger I am feeling. Some people think they are hungry when they are just bored so they eat for comfort and that is a way to get fat. But because I am pregnant, I don't worry about that and I just eat something healthy.
And another issues I have always had is not eating when I be too busy doing something and even if I be starving I still wouldn't stop to eat. I did that a lot before my pregnancy and now it's has only happened three times already throughout my whole pregnancy.
I was even diagnosed with anorexia in 2007 but I don't agree with that diagnoses. I still got my monthly periods and I was never underweight. I learned then you don't need to be skin and bones to be an anorexic. I never got that thin and I wouldn't want to be anyway because I find those images gross when I see them.
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